07-21-18 Patricia Sargeant

Thursday, June 9, 2016

Helping Kids Through Research by Lynn Lovegreen

This month is Charity Month at RTG, when we highlight worthy charities. Today, I’ll tell you about  the Children’s Tumor Foundation.

I became aware of this group when my nephew and his wife participated in Cupid’s Undie Run (cupidsundierun.com), a charity which supports the Children¹s Tumor Foundation (ctf.org). Both have as their sole focus NF, or neurofibromatosis.

Neurofibromatosis encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves and, in addition, can affect the development of non-nervous tissues such as bones and skin. Neurofibromatosis causes tumors to grow anywhere on or in the body. (Alan and Rory’s son Henry has type 1 NF.) 

Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to the goal of finding treatments for NF. Today, CTF is a highly recognized national nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.

If you are untested in supporting CTF, go to their website and learn more about them and their fundraisers. Many families, including ours, thank you.

Lynn Lovegreen grew up in Alaska, and still lives there. Her young adult/new adult historical romances are set in the Alaska Gold Rush, a great time for drama, romance, and independent characters. See her website at www.lynnlovegreen.com.


Sarah Raplee said...

Supporting research for cures and treatments of disease is so important! Autoimmune diseases run in my family, so I can relate. What a wonderful charity to support!

Lynn Lovegreen said...

Thank you, Sarah!

Judith Ashley said...

Thanks for spotlighting a charity and disease I'd not heard of, Lynn. I just read Madelle Morgan's post on MS (I'm catching up on missed posts - backwards). Every donation helps and research is what will find a cure or treatment that puts NF and other diseases in remission.