By Linda Lovely
Author Vivienne
Lorret, my fellow blogger, has already alerted the followers of our Romancing
the Genres blog that June is Alzheimer’s & Brain Awareness Month. But I
decided two blogs on this topic isn’t overdoing it.
Consider these
statistics, provided courtesy of the Alzheimer’s Association (http://www.alz.org/):
·
Alzheimer’s is the 6th leading cause of death in
the U.S.
·
1 in 3 seniors dies from Alzheimer’s or another dementia.
·
It’s
the only cause of death in the top 10 that cannot be prevented, cured or slowed.
·
Alzheimer’s affects about 6% of people 65 years
and older.
·
2/3 of Americans with Alzheimer’s are women.
·
5.3 million Americans currently suffer from
Alzheimer's—an estimated 5.1 million of them are age 65 and older.
I’m over 65 and
female. My mother suffered from Alzheimer’s. So every time I forget a word or a
person’s name, can’t find my car keys, or stare at a pantry shelf wondering
what the heck I needed, I worry. Has it started? The one thing I don’t forget
is to contribute to Alzheimer’s research and support groups—the brains trying
to protect my brain, and yours.
If you’ve known
and loved someone with Alzheimer’s, you know how hideous this disease is. My
mom was a lot smarter than me. She skipped two grades, and she could add and
multiply large numbers without aid of electronics (or even paper and pencil). She
was a card sharp, too. When she was about 76, we noticed she began to have
problems remembering what cards were played. She asked us to repeat things a
lot. At first, we thought she needed a hearing aid. No, she was stalling for
time to try to make sense of what we were saying. She was able to live on her
own for about four years after the symptoms began, because she recognized her
illness and tried to adapt. She pinned house keys to practically every blouse
and jacket she owned. She scribbled notes to herself when she had more lucid
moments.
Still we were
forced to put Mom in a nursing home when she was 80. By then, she was suffering
from hallucinations and was extremely paranoid. She still knew the people she
loved, but was often very confused and excitable. The manager of her apartment
complex was afraid she’d leave on a stove and start a fire. Taking Mom to the
nursing home was the hardest thing I think I’ve ever done. Mom lived ten more
years. Watching the mother I knew disappear was heart-breaking.
So, please
consider what you can do to support Alzheimer’s research. We baby boomers will—unfortunately—swell
the ranks of those who suffer and die from this form of dementia if something
isn’t done to find answers to the why of this dreadful disease.
5 comments:
Thank you for sharing your experience, Linda. This is truly a devastating disease for which we need to find a cure.
You're right, Sarah. The disease has many victims. Loved ones suffer right along with the victims, knowing there's no cure and the person they love will just keep disappearing.
One of the cruelest most insidious aspects of dementia is how long it takes to die. I've told the family of my best friend who has this diagnosis (they are afraid something bad will happen/she'll fall and die for example) that for her to die before she doesn't know who they are would be a blessing. It may sound harsh but I know how terrified she is that some day the people she loves will be strangers to her.
I applaud your courage in making the hard decision about placement so your mother would be safe for however long she lived. Sending hugs your way - I know it is a difficult place to be in.
And you are 1000% correct (yes, I know there are three 0s) two posts on Alzheimer's & Brain Awareness month are not too many.
Sorry to learn of your mom’s struggles. It had to be difficult for you. My parents moved into a retirement village near us in 1986. Both passed away in 1994. We had to put mom in a nursing home in 1992 as she had dementia and began to wander away from the retirement village. It was a very difficult decision to make. Like you it was so hard to see the woman who raised me just disappear before my eyes. Dad died in Jan and she followed that May. I agree that supporting research into dementia and Alzheimer’s is vital, so thanks for the reminder.
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